Care Streams: A Path to Reasonable Care in a Lonely Dying Industry
Care streams are a way of live-streaming the day-to-day life of a person living with a disability, illness, or in the end-of-life phase. They have immeasurable value on the individual, their loved ones, and the community that forms to engage with the streamer. ( What's a Care Stream ) I met Roger Faulkner, a 64-year-old polymer scientist/chemical engineer with ALS, when he brought his MacBook into the computer repair store I was employed in late 2018. His dictation function stopped working making it difficult to write patents or emails using his voice and the limited mobility he had left. While I patched the feature, we started to talk about entrepreneurship. He'd also mentioned wanting a way to leave a large video diary for his son (and family) to have long after he passed. I comped his repair due to the short duration of the fix + the holiday season being near. We traded cards and started exchanging emails a few days later. I thought the live-streaming ...